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Friday 27 January 2012

things special needs parents say #definenormal

I am re posting this as part of the #definenormal blog hop

Nate has complex needs. Our conversations could seem a bit bizarre...

Did you flush his ng?
He needs repeat prescriptions
What time is the OT/physio/paed/resp clinic/neuro/opthamologist/feeding clinic/ appointment again?
Where's the syringes?
His cannula has popped out have you seen the hyperfix?
He ate a wotsit!
He reached out!
He made eye contact!
The probes broken
Beep beep beep ( sats monitor)
I'm going to put my fist through that in a minute ( sats monitor)
I'm exhausted
Pass the calpol
Ive been on the phone to..blank
Blank rang
Nurses are coming out
We need to go to hospital ring the ward
Love you/ lub oo
I must wash that Winnie the poo it's mingin
Where's his gators?
He held his head!
He loved his group
Weve been out all day
He's snotty again ( panic)
I'm putting him on his ventilator now
at

7 comments:

  1. Jane27 January 2012 at 09:19

    Great list - definitely gives a snap shot of your lives. I love your response to the sat monitor - I totally understand and I've only had to put up with them in hospital. :)

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  2. Jane27 January 2012 at 10:03

    I agree with Jane. It does give a great insight into what it's like to have a child with complex health needs.

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  3. Looking for Blue Sky27 January 2012 at 10:18

    Oh Sats monitors I remember them well! Love this list, it brings back lots of memories xx

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  4. Little Mama Murphy27 January 2012 at 13:42

    beep, beep, beep, BEEP BEEP BEEP, BEEPBEEPBEEPBEEPBEEPBEEP!!!!!!

    Grrrrr! Every flipping night!

    Love it - your post - not the sats monitor beeping!

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  5. AutismWonderland27 January 2012 at 18:38

    Great list!

    I get a lot of them!

    Here is my list :)

    http://www.autismwonderland.com/2012/01/sht-autism-moms-say.html

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  6. Sarah Jane Smith28 January 2012 at 01:41

    Brilliant list. I completely relate to the sats monitor as well as why is it beeping now?, where is the posie for his foot?, and where's the charger? which can refer to a few things. In fact as I'm reading this my husband just asked where the syringes are.

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  7. Renata @ Just Bring the Chocolate29 April 2012 at 14:06

    I can relate to a lot of these! The sats monitor nearly got thrown out of the window on many occasions! Thanks for dusting this one off for the bloghop, if anyone else wants to join in, the linky is here...

    http://www.justbringthechocolate.com/define-normal/embracing-the-dirty-added-extras/

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